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IT’S BEEN A LONG JOURNEY; THE BEST IS YET TO COME….

by Jennifer DeAngelis November 28, 2018

2 Comments

IT’S BEEN A LONG JOURNEY; THE BEST IS YET TO COME….

It was six years ago that my mom’s life changed forever. I remember like it was yesterday she was so excited because she just got a job with a caregiver company to be a companion. She loved taking care of others it made her feel good. She had a couple tests she needed to have completed since she would be caring for people with different ailments. That’s when it all went downhill. She started having some issues with her skin, it became red and itchy. She thought it was just a reaction to one of the tests she had. Weeks had gone by and it was getting worse so she decided to go see her doctor who prescribed her some medications.

Things just kept progressing and her skin was getting much worse so her doctor referred her to a skin specialist. She had me come with her to the appointment so that she would have another set of ears and that is when we got the news. The doctor informed her he will need to do skin scraping but he has seen this before and it is a form of skin cancer. Now at that moment, we did not know what type it was until the tests came back. He assured her not to worry and she was in good hands.

The tests results finally came back and my mom was diagnosed with Cutaneous T-Cell Lymphoma. This type of Lymphoma compromises the white blood cells and therefore has an effect on the skin. My mom was nervous, but the doctor was great. He explained everything and started my mom on Photopheresis. This is a treatment where the blood is removed and the white blood cells are isolated then treated with a medication and UVA radiation. The blood then gets returned to the body. My mom continued Photopheresis for a couple years and unfortunately, it wasn’t working so the doctor advised it is time to see an oncologist. 

Off to the oncologist we go! The good news is they have plenty of treatment options available to treat Cutaneous T-Cell Lymphoma, the bad news, how many treatments will my mom have to go through to find the one that works. The answer to that question is fast forward to present day and after four years of her losing hair, being poked weekly, feeling sick, losing weight all along with a smile on her face they think they have finally found a treatment that works. My mom is a trooper and I can honestly say I can’t imagine what it’s like to be her. However my mom and millions of other people with Lymphoma would not have the available treatment options there are today if it wasn’t for the many foundations like the Lymphoma Research Foundation. Mom, I love you and the best is yet to come.

Stayed tuned next getting my mom to visit Florida….

----Jennifer DeAngelis

Founder/Owner KOBI GEAR™ “The Brand for a Cause”

Jennifer DeAngelis
Jennifer DeAngelis


2 Responses

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September 25, 2020

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September 25, 2020

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